First 100 Days After Your Child's Autism Diagnosis
A practical, no-jargon guide for Kent SEND parents. Nothing on this page is medical advice — it's real information from parents who've been there.
Week 1-2: Let It Sink In
You're allowed to feel whatever you're feeling. Relief. Grief. Fear. All of these at once. There's no "right" way to feel about a diagnosis.
🧠 Need to talk?
- Autism Kent: 01227 812220
- NAS Helpline: 0808 800 4104
- SENDIASS Kent: 0300 123 6728
What you CAN do now:
- Get the diagnosis letter — ask for copies for your records
- Tell your child's school — they should start supporting straight away (even without an EHCP)
- Register with Kent Local Offer — kent.gov.uk
- Start a folder — keep copies of everything
Month 1: The Basics
1. Apply for DLA (Disability Living Allowance)
This is non-means tested — your income doesn't matter. It can be up to £182/week.
- Apply online: gov.uk
- Kent parents tip: Keep a diary for 2 weeks. Write down EVERYTHING extra you do that neurotypical parents don't. This is the key to a successful claim.
- Time: Usually takes 8-12 weeks
2. Tell Key People
- School / nursery / childminder
- Health visitor / school nurse
- GP
- Family (if you want)
3. Request a School SEN Support Meeting
Schools must identify and meet SEN under the SEND Code of Practice. They don't need an EHCP to provide support.
Month 2-3: Building Support
1. Consider an EHCP (Education, Health and Care Plan)
An EHCP legally forces the local authority to provide the support your child needs. In Kent, you request through:
- Online: Kent County Council
- Deadline: They have 6 weeks to decide whether to assess
- Tip: You don't need a diagnosis to request — but it helps
2. Explore Therapies
Kent NHS Therapy Waiting Times
- Speech & Language: 18-24 months wait
- Occupational Therapy: 12-18 months wait
- Mental Health (CAMHS): 12+ months
Many parents go private. See our therapist directory.
3. Connect with Other Parents
- Kent PACT — Parents and Carers Together
- Autism Kent — parent support groups
- Local Facebook groups — search "Kent autism parents" or "SEND [your town]"
📋 Downloadable Checklist
Print this out and tick as you go:
Frequently Asked Questions
Do I need a diagnosis to get support?
No. Schools must support children with SEN regardless of diagnosis. You can request an EHCP assessment without a diagnosis. However, a diagnosis helps, especially for secondary school transition and post-16 support.
How much is DLA for an autistic child?
It varies. The care component ranges from £28.70/week (Lower) to £107.57/week (Higher). The mobility component can add another £28.70-75.35/week. Many autistic children get Middle Care + High Mobility.
Can I work if my child has autism?
Yes. But you may qualify for Carer's Allowance if you care for 35+ hours/week and earn under £151/week. You might also qualify for Universal Credit childcare costs help.
What if my child's school isn't helping?
First, request a meeting with the SENCO. Put concerns in writing. If no progress, ask for a formal SEN support plan. Finally, you can request an EHCP — 98% of parents win at tribunal.